Define Me … If You Dare!
I have to accumulate all the data from these varying experiences and use them to define myself. Otherwise, others will do it for me.
I have to accumulate all the data from these varying experiences and use them to define myself. Otherwise, others will do it for me.
Disability in Kidlit will be taking a brief two-week hiatus beginning today, but we’ll be back on January 10, 2014 with more excellent posts.
I can’t tell you how many times people have been dismissive or incredulous about my mental illness, simply because I don’t fulfill their preconceived notions about bipolar individuals.
When I received my diagnosis of Asperger’s syndrome seven years ago, I thought of all the young people today who face the social challenges and bullying that I faced decades earlier. I wanted to create a character like me, but one who fights back against the way others treat her in a way that I never did.
According to pop culture, mentally ill people are magically more creative, filled with a manic drive to create art that pushes them to the brink until they finally explode.
Did you know in the US it’s illegal to drive within six months after having a seizure? Even under supervision, even just around the block, I wasn’t trusted behind a wheel.
Ever seen the Allstate commercial? “I’m a random windstorm. Shaky, shaky.” Well, sometimes that’s how life feels when you’re a kid with disabilities. Because I’m both very random and my life can be, well, pretty shaky.
I’ve never written fiction about living with Crohn’s, and to be honest, I’ve never wanted to. Perhaps because I still feel what I felt for years growing up: that nobody wants to hear about my annoying, humiliating misery. Yet I know, intellectually, that this is a shame, because there should be more characters in YA literature who live with chronic illnesses like IBD.
Severe, chronic vertigo associated with migraines like mine is a “silent” disability, one people can’t see. Many people are compassionate. But others lack sensitivity, assume you’re faking it or just have a headache and will get over it.
Here’s the thing no one tells you about people with a medical condition: The disease is always on their mind, but they don’t always want to think about it.