A Semi-Constant Waiting Game
Today we get most forms of entertainment at the push of a button, so we tend to hate having to wait. The situation is even worse if you can’t read print—resulting in an endless waiting game for blind readers.
Today we get most forms of entertainment at the push of a button, so we tend to hate having to wait. The situation is even worse if you can’t read print—resulting in an endless waiting game for blind readers.
I appreciated the honesty and authenticity with which the emotional aspects of serious illness were written; the actual details of day-to-day life with cystic fibrosis, however, were a mixed bag.
I can feel their eyes on me. They’re all staring, judging.
In my experience, the disabled sibling in fiction exists purely to make the main character’s life more “difficult,” more “sympathetic.” Oh, that poor dear, the writers want you to think,
I’ve never written fiction about living with Crohn’s, and to be honest, I’ve never wanted to. Perhaps because I still feel what I felt for years growing up: that nobody wants to hear about my annoying, humiliating misery. Yet I know, intellectually, that this is a shame, because there should be more characters in YA literature who live with chronic illnesses like IBD.
The two or three months I managed to get by on the reduced dose were enough to convince me: My psychiatrist is lying. I don’t need medication. I’m fine. I can beat this. Until, of course, I couldn’t.
After second grade, I stopped reading most books unless they were assigned for class. Even then, I often didn’t read them. The reason being, when I read a sentence, I often didn’t understand it. Somewhere between my eyes seeing the words and my brain, the phrase disappeared into the ether.
The toughest chapter to write in El Deafo, by far, was the chapter in which I reject sign language.
The “autism voice”—characterized by narrative devices and a detached character voice—tends to portray autistic characters as unworldly, hyper-rational blank slates defined purely by a series of unusual behaviors.
Portrayals of scoliosis in fiction often lack realism. Why is there so little reflection on the factors that affect a person’s journey?