Hypermobility and Representation
It’s clear that many people, including pre-diagnosis me, don’t know much about hypermobility; this only makes the need for representation more necessary.
It’s clear that many people, including pre-diagnosis me, don’t know much about hypermobility; this only makes the need for representation more necessary.
I can feel their eyes on me. They’re all staring, judging.
I’ve never written fiction about living with Crohn’s, and to be honest, I’ve never wanted to. Perhaps because I still feel what I felt for years growing up: that nobody wants to hear about my annoying, humiliating misery. Yet I know, intellectually, that this is a shame, because there should be more characters in YA literature who live with chronic illnesses like IBD.
What is it like to grow up with dyscalculia? And how might a character experience it?
If you looked at me as a teenager, particularly during my freshman year in high school, I would not have stood out from my peers. If you looked closer at my dominant right hand, though, you’d see there was a significant problem.
When creators render a character into their world wearing an entire suit of autistic behaviors, reactions, and needs, dodging responsibility by denying the autism label only serves to hurt the population they’re representing.
Being autistic and also belonging to another minority might be one marginalization too many to sell children’s fiction informed by one’s own experience to a mainstream press, and that is a very sad thought.
A mistake I see a lot of writers who write about disability make is asking only one person for help. I’ve heard so many people say things like, “I have a cousin who is blind, and she read the book and said it was good at portraying blindness.”
Did you know in the US it’s illegal to drive within six months after having a seizure? Even under supervision, even just around the block, I wasn’t trusted behind a wheel.
While I don’t think disability metaphors are sufficient disability representation, I do think that they’ll come up naturally in many stories, and that they’re relevant to the discussion of disability in SFF.